Kate's Point of View

The Product of Creative Frustration

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Your Core Is So Much More Important Than You Know

I hear people talking about their core. Doing core strength training. Engaging their core. It all sounded like nonsense to me until my core really came into play.

A diagram of some your core muscles.

The thing about being sliced open is that it really makes you consider the importance of certain body parts. For the first week of my bed rest after my hysterectomy, I moved very little. After that, I gradually gained more and more strength. I tried to find one victory for each day. “Today I started to roll over!” “Today I almost rolled over!” “Today I rolled over!”

The victories were small.

Although my incision certainly hurt, my biggest roadblock to doing a lot of things was a lack of any muscle strength in my core. Some things I was surprised to learn used core muscles:

  • Going up stairs is not too bad but going down stairs is quite challenging.
  • Sitting down and getting up in general is tricky, but sitting down on and getting up from a toilet is especially hard because of the small surface area with which you have to work and the erect position in which you typically sit. I had to bring a pillow with which to prop myself up.
  • Getting back to an upright position after sliding down into more of a slouch is a near impossibility. Thank goodness Wonder Boy knew some tricks from his nursing days to help me.
  • Tapping your feet at a concert is almost impossible to do but relies more than you know on your core. (This had me in near tears.)
  • Coughing. Ouch.
  • Sneezing. More ouch.
  • Vomiting. I never did this but I spent one evening crying because if a fear of doing it.
  • Picking up something off the floor, or pretty much anything that involves squatting.

I’m moving about with ease now and only have the occasional twinge of pain, usually along my incision line instead of muscular pain.

When I stand up straight  and try to flex my stomach muscles, I’m aware of it. And consider it a pretty big victory.

This post originally appeared on Kate’s Point of View. © Kate. All rights reserved.

Entering the Hospital and Leaving Missing Some Parts

My hysterectomy surgery was, I think, uneventful. It was the scariest thing I’ve ever been through, but I made it out the other side.

I went to the hospital with Wonder Boy and my parents. We didn’t have to wait long in the waiting room before my name was called. (While we were waiting, flowers were delivered to me, which was a cute accident because Wonder Boy intended them for me during recovery. I appreciated them more sans pain medication. Beautiful orchids.)
In the prep area I had all sorts of people asking me questions. I met so many hospital staff. I was scared but it all just presented itself as dead calm. Wonder Boy and my parents were briefly allowed to come back and sit with me before I went into surgery. We made silly conversation about nothing important. I was able to do that. How? How was I able to act cool and collected when inside I was so scared.
Prior to surgery I had sent Wonder Boy an email that was basically a last will and testament. That might be too grand. It was a list of the very few physical things that are important to me and where I wanted them to go. I trusted Wonder Boy for everything beyond that.
I was scared I wouldn’t wake up from surgery. That was based on watching too many medical dramas. I was scared they would find something else once they had cut me open. I kept asking Wonder Boy questions like, “How long will the surgery take?” “What happens if I wake up during the surgery?” “How much is it going to hurt?” “Do you feel it when they put in or take out the catheter?”
He did his best to answer the questions, referring back to his days as a working nurse.
All of those questions that had been playing on repeat went silent at the hospital. I got into my gown. I filled out forms. I smiled and said hello to everyone who introduced themselves. And then I was wheeled back to an operating room where I vaguely recognized my doctor behind her surgical mask.
The next thing I knew, I was on a medical bed saying, “Ow, ow, ow, ow.” Then I went back to sleep. This happened a few times over. I learned afterwards that it took me longer than expected to get moved out of recovery and into my hospital room because they were struggling to manage my pain.
Wonder Boy and my parents were so sweet in the hospital room. Helping me maneuver myself in the bed, getting me water, not acknowledging the fact that I kept passing out thanks to some delightful pain medication.
There were some weird things about my hospital stay I didn’t expect.
  • I was in a labor and delivery unit for recovery so I kept hearing babies cry. I’m pretty solid on this no babies decision I made a long time ago, and I have no choice in the matter now, but even for me, hearing newborn babies’ cries was weird. If I had wanted to have children … I just can’t imagine how hard that would have been.
  • I got to wear the weirdest fishnet underwear! I later learned that this is standard moms in some delivery units. In any other setting it would have been kinky.
  • I didn’t know I would have to pee with someone watching. I tried multiple times in front of the nurses with no luck. But, I needed to pee in order to illustrate that everything was functioning properly. Finally, we got permission for Wonder Boy to take me to the bathroom instead of my nurse, where he propped a pillow behind my back, turned on the faucet and then stood outside the door. After a few tries, that worked.
  • I knew it was going to hurt. I was cut open with a five-inch-long incision and body parts were removed. I didn’t know what to expect with the pain though. When the nurses asked me to get up and try moving, it felt like a gargantuan task. It got easier with each time but apparently my way of sitting up was too rushed. Too fast. “Take your time getting upright,” the nurse would say. But that hurt worse. Overall, the pain wasn’t as bad as I expected, but it wasn’t good.
  • I was told to bring comfortable clothes to the hospital but I felt I should keep it classier than pajamas. Dumb. I brought one of my looser pairs of underwear, jeans that had been stretched out by many, many wears and a flannel shirt. The jeans were pretty stupid but doable. The shirt was fine. That underwear? Idiotic. On our way home, mere blocks from the hospital, I made Wonder Boy stop at a Meijer and asked him to buy the biggest underwear he could find. “If the size isn’t double digits, it’s not big enough. Buy many pairs.”

I was in the hospital overnight. I spent so much of it in a drug-induced haze and sleeping that it went by quickly for me. I’m sure it seemed like much longer for Wonder Boy. But for me, this thing I had fretted about for months and which was scheduled with only a week or twos notice, happened and was done pretty fast.

The recovery. That didn’t seem so fast.

This post originally appeared on Kate’s Point of View. © Kate. All rights reserved.

The Perfect Genes

I came back from a two week vacation, during which my body granted me a reprieve from a period that has been going almost non-stop since July, feeling antsy about some test results. I had done pretty well at checking out during vacation and not thinking about my uterus, but in the back of my mind was still this underlying worry about my results.I got tested for BRCA1 and BRCA2, commonly known as the breast cancer genes, right before leaving on vacation. The idea would be that if I tested positive, my ovaries would exit my body during the hysterectomy. If I tested negative, I would get to keep my ovaries and postpone menopause until it’s naturally occurring time. I like this sort of logic because it’s just that – logic. I don’t understand how people are supposed to make medical decisions without concrete facts. You talk to as many people as possible and collect whatever information you can and then you’re supposed to make a decision based on … what? Your gut? I can’t take that. So this letting what to me was the hardest decision rest on the results of a genetics test was wonderful.

The Monday I returned to work, I started calling for test results first thing in the morning. Because not everything revolves around me, I found myself leaving messages and pleading with front desk staff explaining that I needed the results in time for a 8 am appointment on Tuesday with my doctor.

Finally I got through. The counselor said to me, “When I left you a message saying your results were ready, I tried to imply that the results were good. I hope you could tell that.” Um, not so much. But the results were good! I tested negative for BRCA1 and BRCA2 and it was like an immediate weight lifted off my shoulders.

Although my results don’t really affect my extended family too much – they would have to get their own tests done – I did share everything I learned. It was fascinating to me that I could get a test, 100% covered by my insurance, that gave me such valuable information. I’m not sure if I’d be as enthusiastic had I tested positive because it would have other ramifications in terms of my likelihood of being diagnosed with breast cancer, but for now, the information just feels like great power.

This post originally appeared on Kate’s Point of View. © Kate. All rights reserved.

Dealing With Nausea in the Healthiest of Ways

In the period right before and after I was diagnosed with a fibroid tumor, I was nauseous and queasy and my appetite was terrible. I lost about 8 pounds in as many weeks. Some of it was just being nervous but some was food just not tasting right.Then I figured out what tasted just fine. Froot Loops. Cinnamon Toast Crunch. Honey Nut Cheerios. Lots of lots and Jolly Ranchers. So many Jolly Ranchers

You will note that not a single item in the above list is healthy. Or diet friendly.

Eating like a stoner / college student has led to a few side effects:

  • The 8 pounds I lost over 8 weeks was regained in 3 weeks.
  • I’m eating all day at work, as well as popping Pepto and avoiding certain foods, leading to the pretty obvious assumption by people that I’m pregnant. This is fair since I also alternate between looking really bloated from the tumor to not showing anything at all. On days when I feel skinny, I dress just shy of inappropriate for work so that people might think I’m a little slutty but at least know I’m not pregnant. If there are rumors going around about me, I want to control them to some extent.
  • Grocery shopping becomes fun and Wonder Boy embraces this opportunity to buy junk cereal.
  • So much of the cereal that sounds good is not good, inspiring a future series where I taste test forbidden cereals from my youth.
  • Your bathroom business includes colors that are not present in nature, but do appear in a box of Froot Loops.
  • You realize that for the most part, your mom was right to not let you eat junk cereal.
This post originally appeared on Kate’s Point of View. © Kate. All rights reserved.

Researching What Organs Should Be Removed From Your Body

After getting a recommendation for a complete hysterectomy (uterus, ovaries, cervix … along with a softball-sized tumor), I went into information gathering mode. That presented a few challenges. First, I had to tell people what was going on. And get to a point where I could do that without crying. Second, I had to get information that would help me make the decision that was best for me.My first step was emailing out close friends in small, but increasingly large batches explaining what was happening. I’d say the first 20 responses I got resulted in me sobbing. No one said anything mean. It was all sweet, supportive and nice. But I respond so poorly to sympathy. And was feeling so sorry for myself that sympathy almost was like ammunition to go further in the dumps.

But after a while, it got easier. I received an email from a friend complimenting me on leaning on others. She had been through some hard times and pushed herself out of her comfort zone to rely on the help of others. I’m not sure she realized it, but it was that example I used when contacting people. I admired how she created a support network.

My next step was to get health information. Here’s the thing about researching health. Everyone has opinions. Very few of those people have opinions based in any fact. Articles online? So many are terrible. They are written from very clear points of view that aren’t neutral. And I decided, quickly, that I was only accepting input from experts, which included people with a related medical background or people who had themselves had a hysterectomy while under the age of 40 so their experience might be like mine.

There were more of that latter group than I expected. I approached them with a series of the most intimate questions, sometimes with things implied rather than explicitly stated, and everyone answered everything. It was like being welcomed into this really supportive community I wish I had no connection to.

Through family, I found the name of another OB-GYN to meet with for a second opinion. A friend connected me with a gynecological oncologist / surgeon who was willing to talk to me on her personal cell on her personal time. I talked to someone in genetics who looked at my crazy family history of cancer and told me it wasn’t all that crazy.

You can get all of the information you want. At the end of the day, the task presented was this: “Learn what you can. Think about your options and decide what’s best for you. Then go on vacation and forget all about it! When you come back, we’ll decide what to do and schedule things.”

Forget all about it? I could think of nothing else.

This post originally appeared on Kate’s Point of View. © Kate. All rights reserved.

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